An appointment can cover a lot. Choose the questions that matter today, keep a shared note, and ask for an explanation whenever a term is unfamiliar. This list is a starting point for a conversation with your child’s team.

About the diagnosis: Which findings support CAH, and which tests are still pending? If CAH is confirmed, what form is it? Would genetic testing or a genetic counselor help our family? Can you explain the original screening report alongside the follow-up results?

About each medicine: What is it replacing or controlling? What is the exact name, dose, concentration, route, and schedule? Could you watch us measure and give it? What should we do if our child spits it out, vomits, or misses a dose?

About monitoring: Which measurements help you judge whether treatment is right? How will you follow growth, weight, blood pressure, and blood results? When should blood be collected relative to medication? What changes would make you reassess the plan?

About illness and emergencies: Does our child need an adrenal-insufficiency emergency plan? Please give us written instructions for illness, vomiting, and emergency treatment, and show every caregiver what to do. Who should we contact after hours? What supplies and medical identification should we have?

About going home: When is the next appointment and blood test? Who will send prescriptions and handle refills? What support is available for feeding, insurance, and the emotional side of this? Can we connect with another family through an established support organization?

Before leaving, explain the plan back in your own words and ask the clinician to correct anything you missed. Keep the current plan somewhere all caregivers can find it. Another family’s experience can help you prepare questions; medication changes belong with your child’s treating team.